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SUPPORT
TO PEOPLE LIVING WITH HIV/AIDS (PLWHAs)
Introduction
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TANSACS
is implementing many Targetted Intervention
Programmes during the last 9 years. The objective
of the Networking is focussed in all its programmes
to create an enabling environment for People
Living with HIV/AIDS (PLWHAs) in Tamil Nadu.
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1.
ESTABLISH LINKAGES OF SUPPORT TO POSITIVE NETWORKS IN THE
STATE :
TANSACS
is the first Society supporting People living with HIV/AIDS Network
in India. So far through its continuous efforts, the TANSACS promoted
and supported the following 9 Networks to create enabling environment
for the People living with HIV/AIDS in the State. There are 1200
members enrolled with the following Networks:-
| S.NO. |
NAME
OF THE POSITIVE NETWORK
|
| 1 |
Thiru.
P.Ramapandian, Founder Co-ordinator, Tamil Nadu Network of
Positive People (TNP+)Room No.41, Hayroon Mansion, No.51,
Thayar Sahib Street, Chennai - 600 002. |
| 2 |
Tmt.
P.Kousalaya, President, Positive Women Network of South India(PWN+)No.23,
Brindavan Street, West Mambalam,Chennai - 600 033. |
| 3 |
Thiru.
M.S.Rajendran, President, Vellore District Network of Positive
People (VNP+)5,74C, Katpadi Main Road,. Sethuvandai,Katpadi
Taluk, Vellore District-635 803. |
| 4 |
Tmt.
Y.Anandi, President, Positive's Association Network 16, Muslim
Street, Olagadam Post, Bhavani Taluk,Erode District - 638
314. |
| 5 |
Thiru.
R.Arivu, President, Salem District HIV Ullor Nala SangamNo.256,
G1, 1st Floor, Ammal Lake Road, 2nd Cross Street, Thadagapatti,
Salem - 636 006. |
| 6 |
Tmt.
K.Nirmala, President, Community of People Living with HIV/AIDS
in Tamil Nadu (CPT+)3/74C, Bajanai Koil Street, Konavattam,Vellore
- 632 013. |
| 7 |
Tmt.
M. Saraswathi, President. Thiruvannamalai District Network
of Positive People (TDNP+)20/8-A, Pillaiyar Koil Street, Pudupet,
Kannamangalam, Tiruvannamalai District. |
| 8 |
Ms.
S. Kaveri, Secretary,Trichy District Network of Positive People
Society (TDNPS+)No.3/242, Gundoor, Barma Colony, Airport Post,
Trichy - 7, |
| 9 |
Ms.
R. Venila, President. Dharmapuri District Network of Positive
People (DDNPS+)80, Pennagaram Road, Kumaraswamy Pettai, Dharmapuri
District. |
PROGRAMMES
THROUGH PEOPLE LIVING WITH HIV / AIDS AND NETWORKING AT STATE
AND DISTRICT LEVEL
OBJECTIVES
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To provide an enabling environment for People Living with
HIV/AIDS. |
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To
destigmatize those infected and affected. |
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To mobilise and Network those infected and provide psycho
social support and ensure positive living and productive lives
for many years. |
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To
conduct advocacy programmes in order to sensitize media. |
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To
address legal ethical issues of those infected and affected
promote and protect the human rights of those infected. |
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To
establish linkages with care providers and other NGOs and
Government and ensure quality care. |
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To
raise and mobilise against false claims and magic remedies. |
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To
develop and build capacity of different District level Networks
and ensure effective co-ordination and communication with
District, Natioal and International agencies and other Networks. |
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To
promote positive speakers for addressing General public in
order to sensitize and destigmatize the issue. |
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Identify
People Living with HIV/AIDS and motivate them to joint in
Network. |
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Disseminate
information and Education on HIV/AIDS and fight against stigma
and discrimination in any form through mobilise positive speakers
addressing General public. |
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Provide
Counselling for those infected and affected. |
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Establishing
drop in center in co-ordination with other departments for
General Health Care, Entertainment, Nutrition aspects Spiritual
Counselling etc. |
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Provide
legal counselling for those seeking legal remedies. |
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Conducting
sensitisation programmes for opinion makers. |
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Establish
linkages with inter sectoral welfare departments - NGO, Government
and Care providers and ensure quality care by providing necessary
feedback. |
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Constitute
committees for directions with the Chairmanship of Project
Director, TANSACS, spiritual leaders, Advocates, Care providers,
NYK and NSS members. |
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Develop
cultural troop by positive people in order to address community
for sensitization. |
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Document
case studies and disseminate with the concern of the individuals. |
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Associate
closely with voluntary Counselling and Testing centres for
flow of information on trends. |
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Interact
with care centres / AIDS ward and extend necessary cooperation. |
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Interact
with various forums for demonstrating "Face of Epidemic" |
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Networking/Advocacy
for the entire Country Counselling and enabling environment
for the People living with HIV/AIDS in State Level. |
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Networking
Advocacy Counselling at State Level. |
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Networking
Advocacy Counselling and enabling environment for Women living
with HIV/AIDS in South India more emphasis for Women living
with HIV/AIDS. |
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Networking,
Advocacy for People living with HIV/AIDS at District Level. |
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Enabling
environment for People living with HIV/AIDS. Networking and
Advocacy for People Living with HIV/AIDS. |
So
far TANSACS is working with the People living with HIV/AIDS Networks
at National Level, State Level, District Level.
2.
GREATER INVOLVEMENT OF PLWHAS IN DECISION MAKING PROCESS :
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TANSACS
is the first Society in India involved People
living with HIV/AIDS in involving them in decision
making process. From 1997 onwards People living
with HIV/AIDS were made members in the following
Committees in order to promote greater involvement
and working with them instead of working for
them.
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| S.NO. |
COMMITTEE
NAME |
FROM
WHICH YEAR |
TYPE
OF ACTIVITIES |
| 1. |
Executive
Committee |
1997 |
High
Level decision making Committee. |
| 2.
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Technical
Advisory Committee |
1997 |
Scrutinize
NGO proposals. |
| 3. |
IEC
Sub Committee |
1998 |
Deciding
IEC activities. |
| 4. |
NGO
Sub Committee |
1999 |
Deciding
NGO extension proposals. |
| 5. |
JART
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1999 |
Periodical
Monitoring and Evaluation of NGO activities. |
| 6. |
Technical
Resource Group (CARE and CLINICAL MANAGEMENT) |
2000 |
Guidance
on Care and Support activities. |
| 7. |
Technical
Resource Group (NETWORKING) |
2000 |
PLWHAs
Networking and Enabling Environment. |
| 8. |
Technical
Resource Group (COMMUNICATION) |
2000 |
Advises
on type of message / media required. |
| 9. |
Targetted
Intervention Project |
1999
to Till date |
Inclusion
of Positive person in NGO project is made mandatory. |
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In addition to the memberships in different
Committees, TANSACS directed all the NGOs to
employ one HIV positive person in their projects
as a precondition for releasing the sanctioned
funds to the NGOs from 1999 onwards. This will
create an enabling environment within the NGOs
for a greater understanding about the People
living with HIV/AIDS.
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3. ROLE OF POSITIVE NETWORKS
IN FIGHTING THE STIGMA :
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Many
Advocacy programmes were conducted in the last
3 years for the People living with HIV/AIDS
to address issues in open meetings as positive
speakers in order to sensitize the community
about HIV/AIDS. The following meetings were
conducted for People living with HIV at State
Level.
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| S.NO. |
ADVOCACY
MEETINGS |
ORGANISER |
PLACE |
YEAR |
PURPOSE |
PARTICIPANTS |
| 1 |
World
AIDS Day |
TANSACS |
Rajaji
Hall, Chennai. |
1998 |
Inviting
PLWHA through open News Paper advertise-ment to attend the
open meetings. |
1)
PD, TANSACS2) NGO Advisor. |
| 2 |
State
Level Women living with HIV meet. |
PWN+ |
Asha
Nivas, Chennai. |
1999 |
One
Day Workshop for Women living with HIV Need assessment. |
NGO
Advisor |
| 3. |
State
Level 2 days Conference for PLWHA |
VNP+ |
Vellore |
2000 |
Enabling
environ-ment positive living |
NGO
Advisor
1) Union Health Minister
2) Health Secretary
3) CMC Doctors
4) NGO Advisor and officers of TANSACS
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| 4. |
3
Days Training programme for PLWHA Network and PLWHAs |
TNP+ |
Asha
Nivas, Chennai. |
2000 |
Capacity,
Skill Training |
1)
PD, TANSACS
2) NGO Advisor
3) Journalists from North India (UNAIDS)
4) PLWHAs from the State. |
| 5. |
2
Days Training programme for PLWHA Network functionaries |
Madras
School of Social Work |
Madras
School of Social Work |
2000 |
Training |
NGO
Advisor, Network functionaries. |
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The
UNDP workshop on "Greater involvement of
People living with HIV/AIDS (GIPA) conducted
in Tamil Nadu during 1999 at Chennai in which
TANSACS Co-ordinated the Networks in our State.
TANSACS proposed to strengthen the capacity of
the Positive Networks through UNDP finance support
for the year 2003 to 2005.
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SUPPORT SERVICES TO MAINTAIN THE HEALTH AND DIGNITY
Legal and Counselling / Information Cell
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| TANSACS
planning to establish one Free Legal Counselling
Cell for addressing Legal and Ethical issues of
PLWHAs in the State at Chennai from December'2002
and planning to conduct training programmes for
PLWHAs on protection and promotion of human rights.
In the NGO training programmes the PLWHA Network
members addressed them and advocate Positive living
and enabling environment. The Legal and Ethical
issues also incorporated in all the NGO Training
programmes. The information cell created will
be able to fulfil the requirements of affected
and unaffected people, on the facilities available. |
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CARE AND SUPPORT FOR PLWHAS :
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| Care
for opportunitic infections of those infected
for the last 3 years through NGOs. NGOs encouraged
to provide both Hospital and Home care for those
infected. So far 3 institutional Care Centres
and 2 Community Care Centres projects implemented
through NGOs in different Districts of the State. |
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CARE
AND TREATMENT IN GOVERNMENT HOSPITALS :
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Government Hospital for Thorasic Medicine, Tambaram,
Chennai is the place in which largest number of
patients admitted and treated every day. Similar
special care for infected people expanded to other
Districts of the State. The Counselling services
are being strengthened through Voluntary Counselling
and Testing Centres (VCTC). |
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